{"id":26753,"date":"2021-12-14T14:11:42","date_gmt":"2021-12-14T13:11:42","guid":{"rendered":"https:\/\/ellipse.prbb.org\/?p=26753"},"modified":"2022-02-08T10:37:31","modified_gmt":"2022-02-08T09:37:31","slug":"aspectes-etics-de-crispr-un-debat-necessari","status":"publish","type":"post","link":"https:\/\/ellipse.prbb.org\/ca\/aspectes-etics-de-crispr-un-debat-necessari\/","title":{"rendered":"Aspectes \u00e8tics de CRISPR: un debat necessari"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">El 2 de desembre es va celebrar al&nbsp;<a rel=\"noreferrer noopener\" href=\"https:\/\/www.prbb.org\/?l=ca\" target=\"_blank\">Parc de Recerca Biom\u00e8dica de Barcelona (PRBB)<\/a>&nbsp;un <strong>debat sobre l&#8217;\u00e8tica de l&#8217;edici\u00f3 de la l\u00ednia germinal del genoma hum\u00e0<\/strong> que les tecnologies basades en CRISPR han fet possible. L&#8217;acte va estar organitzat pel <a rel=\"noreferrer noopener\" href=\"https:\/\/prbbgoodpractice.wordpress.com\/gsp-working-group\/\" target=\"_blank\">Grup de Treball de Bones Pr\u00e0ctiques Cient\u00edfices del PRBB<\/a> i moderat per Juan Valc\u00e1rcel, investigador del <a rel=\"noreferrer noopener\" href=\"http:\/\/www.crg.eu\/\" target=\"_blank\">Centre de Regulaci\u00f3 Gen\u00f2mica (CRG)<\/a>. Ell ha compartit aquest resum de l&#8217;acte.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Unes <strong>25 persones <\/strong>dels diferents centres del PRBB van reunir-se per veure una versi\u00f3 abreujada del documental \u00ab<em>Human nature<\/em>\u00bb (Adam Bolt, 2019) i participar a continuaci\u00f3 en una animada discussi\u00f3. Tot i les opinions contrastades sobre temes concrets, el p\u00fablic va tendir a estar <strong>d&#8217;acord en diversos temes importants<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En primer lloc, que els experiments realitzats el 2018 pel Dr. He Giankui i el seu equip de Shenzhen, per eliminar el gen CCR5 d&#8217;embrions humans amb l&#8217;objectiu de generar resist\u00e8ncia a la infecci\u00f3 pel VIH, representen un frac\u00e0s polifac\u00e8tic, que abasta des de la base cient\u00edfica bastant pobra de la modificaci\u00f3 gen\u00e8tica escollida, a la manca de transpar\u00e8ncia sobre el judici i el dest\u00ed d&#8217;aquest investigador per part de les autoritats xineses.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En segon lloc, que per evitar variants gen\u00e8tiques que causen malalties, el <strong>cribratge previ a la implantaci\u00f3 d&#8217;embrions humans<\/strong> \u00e9s, per a la majoria de finalitats terap\u00e8utiques, una alternativa t\u00e8cnica<strong> m\u00e9s segura que l&#8217;edici\u00f3 del genoma<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En tercer lloc, que <strong>l&#8217;edici\u00f3 d&#8217;embrions humans amb finalitats de millora<\/strong> pot (i hauria de) ser objecte de debat social, malgrat les dificultats intr\u00ednseques per definir els trets desitjables, establir marcs reguladors i abordar la probabilitat que aquests tractaments augmentin les desigualtats socials i produeixin un tipus de societat de l&#8217;estil descrit a \u00abBrave new world\u00bb per Aldous Huxley.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Finally, that <strong>holding productive debates around genome editing of human embryos <\/strong>will require public open access to high quality, objective information as well as transparent, consensual decision-making procedures. <a rel=\"noreferrer noopener\" href=\"https:\/\/ellipse.prbb.org\/isglobal-joins-verificat-i-media-and-aleteia-to-combat-misinformation-about-covid-vaccines\/\" target=\"_blank\">Negationism <\/a>of the Covid-19 pandemia, or of <a rel=\"noreferrer noopener\" href=\"https:\/\/ellipse.prbb.org\/what-if-there-is-a-coronavirus-vaccine-and-people-dont-want-to-get-vaccinated\/\" target=\"_blank\">the value of vaccines<\/a>, illustrates the difficulty to define universally accepted criteria for what is objective information in public debates. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Finalment, celebrar <strong>debats productius sobre l&#8217;edici\u00f3 del genoma d&#8217;embrions humans <\/strong>requerir\u00e0 un <a href=\"https:\/\/ellipse.prbb.org\/ca\/michela-bertero-crg-coordinadora-dorion-la-ciencia-oberta-ha-arribat-per-quedar-se\/\" target=\"_blank\" rel=\"noreferrer noopener\">acc\u00e9s obert p\u00fablic<\/a> a <a href=\"https:\/\/ellipse.prbb.org\/ca\/lisglobal-es-suma-a-verificat-i-media-i-aleteia-per-combatre-la-desinformacio-sobre-les-vacunes-de-la-covid\/\" target=\"_blank\" rel=\"noreferrer noopener\">informaci\u00f3 objectiva d&#8217;alta qualitat<\/a>, aix\u00ed com procediments de presa de decisions transparents i consensuats. El <a href=\"https:\/\/ellipse.prbb.org\/ca\/que-passaria-si-hi-ha-una-vacuna-contra-el-coronavirus-i-la-gent-no-vol-vacunar-se\/\">negacionisme<\/a> de la <a href=\"https:\/\/ellipse.prbb.org\/ca\/tag\/coronavirus-ca\/\" target=\"_blank\" rel=\"noreferrer noopener\">pand\u00e8mia de la Covid-19<\/a>, o del valor de <a href=\"https:\/\/ellipse.prbb.org\/ca\/com-estan-fetes-les-vacunes-contra-la-covid-19\/\" target=\"_blank\" rel=\"noreferrer noopener\">les vacunes<\/a>, il\u00b7lustra la dificultat de definir criteris universalment acceptats per al que \u00e9s informaci\u00f3 objectiva en els debats p\u00fablics.<\/p>\n\n\n\n<div style=\"height:44px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p>Seran necessaris debats p\u00fablics sobre l&#8217;edici\u00f3 del genoma d&#8217;embrions humans. Alguns reptes seran definir criteris universalment acceptats sobre qu\u00e8 \u00e9s informaci\u00f3 objectiva i definir qui ha de participar i prendre decisions sobre aquests temes.<\/p><\/blockquote>\n\n\n\n<div style=\"height:44px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">A m\u00e9s, <strong>qui han de ser els \u00f2rgans de decisi\u00f3<\/strong>? Certament, no nom\u00e9s personal cient\u00edfic o m\u00e8dic, per\u00f2 probablement tampoc nom\u00e9s pol\u00edtics, fins i tot en sistemes representatius democr\u00e0tics.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L&#8217;animada discussi\u00f3 entre els investigadors i investigadores del PRBB va acabar amb tantes preguntes obertes com punts d&#8217;acord. La <strong>necessitat de m\u00e9s debats<\/strong> &#8211; tamb\u00e9 <strong>m\u00e9s enll\u00e0 de la comunitat cient\u00edfic<\/strong>a &#8211; \u00e9s evident.<\/p>\n\n\n\n<div style=\"height:41px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Per saber-ne m\u00e9s<\/em>: La Secci\u00f3 de Ci\u00e8ncies Biol\u00f2giques de l&#8217;Institut d&#8217;Estudis Catalans ha publicat un <a href=\"https:\/\/publicacions.iec.cat\/repository\/pdf\/00000301\/00000024.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">document de refer\u00e8ncia rellevant sobre l&#8217;impacte de les tecnologies d&#8217;edici\u00f3 del genoma<\/a>, coordinat per Marc Exp\u00f2sit-Goy, Ramon Bartrons i Jaume Bertranpetit.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>El grup de treball de Bones pr\u00e0ctiques cient\u00edfiques del PRBB va organitzar un debat per als residents del parc per discutir les implicacions \u00e8tiques de l&#8217;edici\u00f3 del genoma amb CRISPR.<\/p>\n","protected":false},"author":6,"featured_media":26749,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[32],"tags":[434,564],"new-type":[38,35],"class_list":["post-26753","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vida-cientifica","tag-bones-practiques-cientifiques","tag-edicio-genomica","new-type-a-fons","new-type-noticies"],"acf":[],"_links":{"self":[{"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/posts\/26753","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/comments?post=26753"}],"version-history":[{"count":3,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/posts\/26753\/revisions"}],"predecessor-version":[{"id":26771,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/posts\/26753\/revisions\/26771"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/media\/26749"}],"wp:attachment":[{"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/media?parent=26753"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/categories?post=26753"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/tags?post=26753"},{"taxonomy":"new-type","embeddable":true,"href":"https:\/\/ellipse.prbb.org\/ca\/wp-json\/wp\/v2\/new-type?post=26753"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}